It has been a long time since I've written in this blog, or even thought about it. Tonight, I have some things to say that might be important, so I’m putting them out into the universe in hopes that it reaches even one person.
Psychiatric help in this country is not accessible. In order to get immediate help when in crisis, you have to either pay an extraordinary amount of money out of pocket, or you have to wait weeks on end. It is amazing to me the number of psychiatric practices that do not accept insurance. What that says to me is that helping people is not their primary concern and it pisses me off.
Since September, I have been struggling. In fact, I do not feel I am being dramatic when I say I am in the worst mental health crisis of my life, possibly even worse than when this journey began.
This is something that has happened on and off over the last decade and I’ve come to accept that things will never be "perfect" and I will always battle these disorders. What I did not expect was that, while on multiple medications, I would relapse into severe panic disorder.
For the last couple of weeks, I have felt like I’m having a panic attack all day. My only relief is sleep. I’m paralyzed by fear and panic and have only barely functioned in any sort of meaningful way. For the second time in my life, I am staying with my mom, because it’s safer for me not to be alone when I am this desperate.
Mom and I spent hours today making phone calls to various emergency psychiatric facilities in town. She had to push me to even make the calls or pack a bag and come to her house because I was so incapable of rational thought or doing anything but surviving the minute in front of me.
The only one that sounded the least bit compassionate to my struggle was Seven Counties. I spoke to various hospital psychiatric wards today who warned me that I would not be admitted anywhere without being a threat to myself or others. So, I have to be fully suicidal to get help. I am not suicidal. I have seen how death, especially sudden death, has torn a massive hole in my family that will never fully heal. In my worst moments, I could never do that to my family. I do not want to die. I want to live, and I want to be able to do that fully, and happily.
The worst part about this recent relapse is that I did it to myself, sort of. I wanted to see if I could come off of Celexa because of its side effects – appetite stimulation which no doubt contributed to the unhealthiest I ever was in my life, just a year and a half ago; sedation, which was likely causing a lot of my lack of motivation in daily activity; emotional suppression, which left me feeling like a robot. I knew what I should be feeling, but I couldn’t actually feel it. I am not even sure I was able to fully grieve my father until recently.
Unfortunately, I have been going downhill since. The easy solution would have been to replace the Celexa with a similar drug (SSRI). The nurse practitioner I am currently seeing recommended other paths and long story short, here we are months later and I am as bad, if not worse, as I was when my panic disorder was first diagnosed. The difference is back then I wasn’t medicated at all. This NP now has me on FOUR medications, one of which I will be tapering off of soon. I could go on and on about the ways this NP has made me feel uncared for, judged, and belittled, but I won’t go into that now because frankly my anxiety can’t take it.
Hence the phone calls to emergency providers across the city. No one can help me. Doctors who do take insurance have weeks long waiting lists and there are so many that don’t take insurance. I certainly can’t afford that and it makes me wonder about people who are not as privileged as I am.
I have resources. I have an insurance plan, and paid time off work, and a family who will support me to the ends of the earth if that’s what it takes. I have friends, some of whom have their own struggles and some who don’t, who have reached out to me throughout this time to check in, and even when all I could muster was a couple of words, they supported me.
What happens to the people who don’t have that? Those who can’t afford the insurance options in the country, let alone the cost of out-of-network or (worse) completely out of pocket providers. What happens to the people who are alone and don’t have the kind of support system I do?
This is why mental health care in this country needs reform and we need it now. There are so many people who have it worse than I do, with more serious mental illnesses and no help. These are often the people who turn to drugs and alcohol, erratic behavior, or worst of all, taking their own lives.
Furthermore, we need to break the stigma against mental health and finally get it recognized as being just as valid as any other physical illness. There are meds that can help, and some of them can be addictive so many providers have stopped prescribing them. I am all for fixing drug addiction in this country, don't misunderstand me. There are some of us that need help, and those drugs are the only thing that help. One way this could change is if better funding and research was available to the mental health community, so that new and better treatments and facilities become available. Until mental illness is taken as seriously as, say, heart disease, diabetes, or even cancer, I fear we won't see progress and people will continue to lose their lives to these illnesses.
I don’t know how to affect change to our mental health community, but I hope that telling my story will raise awareness. It’s a start.